Wednesday, June 29, 2011

Round two

For those who don't know, Lucy was diagnosed with Juvenile Idiopathic Rheumatoid Arthritis in June of '09. Was declared in remission last November and has been medication free since then. About Two months ago she started flaring up again. She was having morning stiffness, and having trouble walking up and down stairs, and cannot open her mouth wide enough to take bites of food. among other things. So after much prayer and discussion Tyler and I decided to get her back on medications, this was NOT an easy decision.

What a day yesterday was! We left Pocatello around 12:30ish after Tyler got done with his class, and headed to Salt Lake. Lucy was so excited to go see her Doctor... little did she know. we got to Salt Lake at like 3 and Tyler and i decided to introduce ourselves to In and Out Burger, since neither of us had ever been, and all our friend to is RAVE about it. Results: eh.... I know some of you will probably disagree, but I didn't really think it was anything special. I would much rather go to 5 guys, they have way better fries, and you can put whatever you want on your burger! Although the price was great. I would probably go again if given the chance, but not my FAVORITE.

We finally made it to Primary Children's and we checked in, well tried. They told us the wrong Hospital. Dr. Bohnsack was not at Primary Children's that day, he was in Riverton... so they called over there and asked if he would still see us and he said he would. So we drove the extra 40 minutes in rush hour traffic to the Riverton Hospital. It was now 5pm and we were the only ones in that section of the hospital. Last patients of the day.
Bernadett came in (the dr assistant) and checked Lucy out. And suprisingly Lucy did really well with her, this was a huge change from a year ago. She noticed that Lucy had flare ups in her neck, jaw, knees, hands, wrists, and elbows... to name a few. This all happened in a matter of two months. Since Lucy first came in in such bad shape and the disease was so prevelant in her body, that a flare up like this needs drastic, fast action to get her feeling better and also to make sure her joints and bones don't get damaged from the swelling and inflamation. Then we started talking about a plan of action. They put her on 4 different prescriptions. This seems like a lot.. and it is a lot for me to remember. Especially because two of them are everyday! She will be  doing the two injections every week that she was on before, Enbrel and Methotrexate. And those will be given sub-cued by me. Lucy gets a little nervous now that she is a little older, but she did really great this morning. Only nervous of the thought of the needle, but after  it was done she was fine and realized it wasn't that bad. she is also on a folic acid pill, which I will have to crush up and mix with apple sauce or yogurt every morning - this is supposed to help with symptoms from the Methotrexate like nausea and such. And she will be on Prednisolone everyday for the next 6 weeks. This is a steroid that will probably be the most fast acting to get her to feeling better. The Dr told us that this will also increase her appetite and hopefully help her gain some weight. They were worried about her being so little, she weighed in yesterday at 27 lbs, which is low for a 3 1/2 year old. Especially since a year ago she weighed 23, so she has only gained 4 lbs in a year. But seriously.... she does eat, and we do feed her! She just has a small stomach I guess.

They also wanted to take some blood and do some x-rays, so we headed down to the lab, they kept it open just for us. I was so grateful. Lucy did awesome with the blood work, only cried a little bit and was so excited that she got to get a special band-aid. then we headed over to medical imaging, and this was the rough part of the day. I of course couldn't be in there with her because I am pregnant, I just stood behind a wall and could see through a window what was going on. They got her hips and hands done, but when they moved her into the next room and had to do her neck, she flipped! She was not having those ladies touch her anymore! Yes... she is a red-head, and yes she has a temper and can be so stubborn when she wants to be. I almost started crying I felt so bad. Nothing feels worse than not being able to be there for your child. Tyler could be in there but she was crying for Mommy. But we got through it and she got to hug me all she wanted after it was all done.
Then we headed to See grandpa Haas! What a great treat after a LONG day of Doctors and nurses. we were only able to visit for a couple of hours since it was so late. So we headed home back to Pocatello. we arrived in town about 11:30 so I decided to drop Tyler and Lucy off at home so he could get her in bed, and get some studying done. I went over to the pharmacy to get all her meds. they told me it would be 10-15 minutes, what he should have said was it will be 10-15 minutes for EACH ONE. finally they were done at 12:30am. and I was beat! I went home and straight to bed relieved that my sweet daughter will finally start feeling better and stop hurting.

This was a big decision for me to get her back on medications. I am not a fan of just medicating everything, especially for her being so young, but she went from bad to worse so quickly that I had to do something. There were days in the last two months where Tyler would be helping her get dressed and Lucy would just cry in pain and he would cry along with her because he couldn't bare to see his daughter like this. I think for me it is something that I see and deal with every day, yes I get sad, and have my moments, but it really hits him hard because he doesn't see it as much when he is at work or at school. But we are on the mending track again. and hopefully she will get back in control and her arthritis will yield.
We love you all and are so grateful to feel the love and support. This is an on-going battle that hopefully someday we will win.

Friday, June 17, 2011

Happy Birthday Tyler!

The Body Exhibit in Idaho Falls
We went and Saw Super 8

And we visited the new Simply Mac store in Idaho Falls
Happy 27th babe! It was a fun day celebrating your day. I hope you had fun too! We love you!

Tuesday, June 14, 2011


Remember our Aero gardens??? Look at them now!! Two and half weeks later, and we are eating our lettuce! Its so freaking delicious! This is about a month and one week of growth.
If you want to take another look from two weeks ago.... go HERE

Our Lavender has yet to bloom, but it smells yummy if you put your nose right up to it.

Yes, we endorse child labor. I finally got the energy to clean up our back deck area. We had all sorts of stuff being stored there, stroller, bike, cardboard boxes, an old, but BIG planting pot (not ours), and LOTS of leaves.

What can I say....? She is a great Sweeper!

And here are just some cute pictures from today.

Memorial Day

Sorry Mom, This is pretty late. (I lost our camera)

But here are the pictures from putting flowers on Grandpa Matson's grave.

Grandpa and Grandma, You are missed.

We also put flowers on the Hansen's grave as well...

Tyler took a panoramic view of all the flowers... it was amazing to see all the love.

Birthday Wish List

I cannot believe I am going to be 24!! That means in only 4 years I have my high school
reunion... I feel so old. But I bet I don't feel as old as my siblings. haha... They probably can't believe their baby sister is getting old.

So this list is more for my husband than anyone else. He has a hard time when it comes to birthdays... mostly mine. So this year I thought I would come up with some ideas for him.

These are not in any sort of order.

1. Ti Creative chrome hair styling Iron from this web sight

2. A new iPod touch (8gb)
3. A Pedicure (with you)+ hair cut

4. Friends Complete series on DVD which you can buy here
5. Jewelry is always nice

6. Gift cards are also ok (though I would like to be surprised on my birthday)

There you have it. These are all pretty pricey, but since we are making up for 4 years here... haha. just kidding Tyler! Anything you do or get for me I will love, even if it isn't from this list. These are just IDEAS to make your life easier. Love you!

Friday, June 10, 2011


Our Dick's Sporting Goods had its GRAND OPENING today! And if anyone knows my husband, they know that he has been waiting for MONTHS for this. Everytime we go out he makes me drive past to see the progress.

So today was the day. And guess what I got????

A new hat, for family reunion next month, and my FIRST Nalgene water bottle! (we also bought a brita pitcher, since Idaho water is DISGUSTING!) So now, I can make sure I drink enough water EVERY day!! Oh the simple pleasures in life, right??

Saturday, June 4, 2011


Okay so I am not going to be all obsessive about this pregnancy, especially because it isn't my first. I mean... I think its wonderful for first time women to post a bazillion pictures, but I am NOT going to, I just didn't like last weeks, so i took some better ones :)

14 weeks!